MS Frustrations
My family doctor has returned from his month away and I have yet to see him. I am concerned that he did not get in touch to discuss treatment options or what the plan is to improve my situation. it is becoming more discouraging and disheartenting every day.
This morning I was unable to participate fully in Emeraude’s gross motor skills program (even more frustrating as the lady in charge was great and the class very action packed and fun otherwise). I missed out for no good reason; my standing order is apparently still set for every 6 hours and since I had gone in at 5:30 to make sure I could stand/walk when the kids woke up to make breakfast and do all the morning things moms do, by 8:30 I was having difficulty walking because of too much pain.
I also missed Lloyd’s basketball practice (AGAIN) after school, as I was incredibly fatigued and spent the majority of the afternoon horizontal. I was able to do a little ‘foam’ (similar to play doh but little balls that do not stick to anything but each other and mold well, also do not dry) play with Emeraude for about 30 minutes but then simply watched from the couch as I could no longer hold myself sitting up, just exhausted. I was also in a great deal of pain but wouldn’t have bothered to go in for an injection even had the standing order allowed it as I was too fatigued to funcion.
It is all becoming too much. I am falling behind on everything (cleaning, work, my proposal to second story publishers, haven’t scrapbooked since before christmas, my camera is full of photos but i do not have any energy to divert to making room on my laptop, the list is endless and getting longer every day I am left in declining physical condition) and am not able to continue compromising my parenting standards without eventually becoming depressed…
I have lost a great deal of weight this month as is typical when my health deteriorates and nothing is done. This of course can only contribute to further fatigue.
prayers welcome, God give me the strength to fight for treatment.
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- Emeraude, morning excercises on the trampoline. 🙂
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- My girl in her tutu at Gross Motor Family Fitness
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- Bricolage bonhommes de neige au cercle des amis
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- Emeraude travaillant fort.
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- Emeraude nursing brother’s headache.
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- Emeraude takes care of Lloyd
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- My silly girl looking through a saline bag.
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- Emeraude & Lloyd ‘camping’ in the living room (sweet brother).
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- Posing in a new pj from Grandma Teena
Gallery Above: We have had to settle for indoor activities alot more as just getting suited up for the outdoors can be overwhelming for me these days. I have with alot of help from Lloyd been able to keep my comitment that she get time outside (at least an hour) every day unless it is colder than -25. This weekend I only managed to bring my girl skiing once and then for only about an hour (Daniel didn’t ‘feel like it’ which was dissapointing as another adult helping would’ve permitted me to hold out a little longer). As it was I was almost in tears by the time I took off my ski boots… I had hoped that he was saying no to her requests for him to ski because he had other plans (I had brought Lloyd’s skis/boots so he didn’t have to rent any) with her but he did not and despite his backyard rink, her skates never left the duffle bag I sent them in.
