MS Treatments
Steroids on the horizon
I spoke with Dr. Crawford (our new family doc) on Saturday and discussed my needing treatment sometime in the next few weeks. I was very happy that he understood this could be a problem if I managed to hold out until he was gone and there were only locums left, SO, he wrote up a standing order allowing me to decide when to receive my treatment (1500mg of IV Solumedrol every day for 3 consecutive days). I have not however been able to decide as of yet wether that time is now.
He also agreed that as my morphine injections did not seem to be having the desired affect we would switch the standing order to 4mg of dilaudid + 30 mg toredol (the toredol stayed the same). Unable to write a standing order for these for more than 72hrs, he has assured me that he will put a note in my file to help facilitate any emergency visit with locums. (there is a locum coming in that I have had issue with in the past and so I am concerned as to what I might have to deal with should I need to attend the emerg).
I have not been dealing with a significant amount of fatigue, mostly just pain and so am weary of getting my steroids as of yet (the potential risks of these long term are quite serious and so I have tried to always put them off for as long as possible). I am expecting my menses which could account for the pain I am dealing with and obviously, steroids are not a way of dealing with those.
Yesterday I only ended up going to the ER once for an injection so maybe things will continue slowly. Emeraude had of course spent the majority of the day (from noon until after supper) @ Grandmaman’s so I had taken advantage of this to keep my physical activity to the minimum. I am already however (it’s only 10am) dealing with alot of pain in the bones of my legs, feet and hands so, I will have to take the day as it comes…
Will see. Lloyd has asked that I not schedule anything for New Year’s Eve evening. The steroid treatments only run over an hour though and if they are necessary, he will have to just postpone going out until after I have received them. Of course, I will do my best to schedule any necessary treatments for earlier in the day so as not to mess up his plans.
**Worth mentioning that my port-a-cath became useless some months back and so I will have to get an IV shunt put in to receive my treatments… Yes, the ‘glove issues’ are still very much happening and the last IV that was put in had to be in my antecubital**
