This week seems to be flying by faster than I can process. I promised the EDC photos that I have not even had a chance to look through yet *eesh*, Tomorrow I have an appointment with Dave (from the EDC) to work on my cover letter for Second Story Press and I had hoped to be much [Read more]
Kids are at school and so will keep this short. Feeling very hopeful about the results of the IV Solumedrol (5day/1500mg/day) I received this week. My MS Symptoms (pain, fatigue, cognitive functions, etc) have defenitely been reduced. Will go for blood work today however to check ESR levels as my [Read more]
Last night… Thought we’d go in at a decent time tonight as I have messed up Lloyd & Emeraude’s evenings/bedtimes during this whole treatment. Lloyd has badminton and so Emeraude came with me to MGH and I hoped to get her some supper at the cafeteria between IM Toredol and the [Read more]
After 2 hours of arguing with Dr.Crawford about increasing my pain meds, the discussion turned to Tuesday’s (tomorrow) appointment and that I was hoping to suggest giving my IV Solumedrol treatments again (they failed in January but that was a full 3 months ago and my body might have lost [Read more]
I was relieved to see Bonnie was attending when I went in this evening. The IV that had been put in last night (anticubital by my request) looked awful, the butterfly sides not having been taped had gouged into my arm (read yesterdays…) and so I asked her if she could put in a new [Read more]
I’ve fallen ridiculously behind on my blogging. My days seem to blend in to each other as it has been necessary for at least a month now that I go to the hospital every day (sometimes even two or three times in a day) for injections for pain meds. I am incredibly fatigued and feel [Read more]
I was woken up by Lloyd this morning, poached eggs in hand and I couldn’t have been more appreciative of his efforts! Emeraude had offered to accompany me to my treatment last night at bedtime and so he had already fed her some breakfast as well. I worked at getting the two of us ready [Read more]
"...not been dealing with a significant amount of fatigue, mostly just pain and so am weary of getting my steroids as of yet (the potential risks of these long term are quite serious and so I have tried to always put them off for as long as possible)..." [Read more]
