On a different note, I was advised today that my readership included a group I was not previously aware of. Apparently there are some among the staff @ MGH (our local hospital) who are fond (or perhaps that's not quite the right word lol) let's say who have noticed my blog. Apparently some are [Read more]
Ok, another very busy day (in spite of having less than adequate supplies of energy). The kids were a huge help. So was Vickie as she has been ever since my symptoms began coming back with a vengeance last week. She goes beyond giving me rides to the hospital and has been calling to arrange [Read more]
I finally took up the offer of yet another very kind lady who had given me her phone number during the bad months at the beginning of the year when I was going to the hospital in way too many taxis. I felt a little odd calling someone I don’t know for a ride but [Read more]
...The way she had to walk when she got up realizing her pants had taken in water and she was soaked through, we tried wringing out her mittens which were saturated but ... [Read more]
…ludicrous generally refers to something so ridiculous it is laughable. I am no where near laughing at this situation yet but I liked the illiteration. Yesterday, Emeraude and I had 2hrs stolen out of our day by a locum who seemed to have too much free time on his hands, I thought then that [Read more]
When I finally got called in Mrs. Ormston had completely won Emeraude over ...and she (E) had no interest in accompanying me lol. Mrs. Ormston said she didn't mind her staying with her to play and I knew this was sincere and that she was in great hands so let Emeraude stay with her having fun... [Read more]
I am realizing that it is going to be incredibly difficult to not only wake up tomorrow but also attend my a.m. doctor’s appointment in any kind of participatory way. I am struggling to peice together the pages of notes and changes that Dave (EDC) and I made to my cover letter as I am [Read more]
...recipe for the colouring solution. I melted parafin wax which Emeraude used a shishkabob stick to draw with on some eggs, we dipped a couple into it (just the ends) and also just drizzled the wax randomly on others. Lots of fun, they look great, just need to pick up some inexpensive baskets from [Read more]
MS/Migraine Connection from Reader’s Digest – Click for PDF. Gotta love this… I have suffered from dibilitating head pressures (not regularly) which only occured since my MS Diagnosis. I insisted to doctors that these were NOT IVIg but connected to my menstrual cycle & MS and [Read more]
After 2 hours of arguing with Dr.Crawford about increasing my pain meds, the discussion turned to Tuesday’s (tomorrow) appointment and that I was hoping to suggest giving my IV Solumedrol treatments again (they failed in January but that was a full 3 months ago and my body might have lost [Read more]
Well, the 5 day predinose attempt is done (it finished Sunday); Dr.Crawford wanted me to take 50mg of oral prednisone daily as he though t this would improve my symptoms (I am as I write, feeling a little concerned that perhaps he too is falling into the idea of focussing on pain as my worst [Read more]
I’ve fallen ridiculously behind on my blogging. My days seem to blend in to each other as it has been necessary for at least a month now that I go to the hospital every day (sometimes even two or three times in a day) for injections for pain meds. I am incredibly fatigued and feel [Read more]
"...a dilaudid injection (I had had a standing order that included toredol but when it was brought to my doctor's attention that I had been receiving it for more than 5 days he..." [Read more]
these are notes I'm transefering from my facebook files to give some history... the following are comments that were posted to this note at the time (I feel these are important to transfer along with my original notes as the comments and well wishes form friends have often been what takes me [Read more]
