On a different note, I was advised today that my readership included a group I was not previously aware of. Apparently there are some among the staff @ MGH (our local hospital) who are fond (or perhaps that's not quite the right word lol) let's say who have noticed my blog. Apparently some are [Read more]
Ok, another very busy day (in spite of having less than adequate supplies of energy). The kids were a huge help. So was Vickie as she has been ever since my symptoms began coming back with a vengeance last week. She goes beyond giving me rides to the hospital and has been calling to arrange [Read more]
...The way she had to walk when she got up realizing her pants had taken in water and she was soaked through, we tried wringing out her mittens which were saturated but ... [Read more]
When I finally got called in Mrs. Ormston had completely won Emeraude over ...and she (E) had no interest in accompanying me lol. Mrs. Ormston said she didn't mind her staying with her to play and I knew this was sincere and that she was in great hands so let Emeraude stay with her having fun... [Read more]
This week seems to be flying by faster than I can process. I promised the EDC photos that I have not even had a chance to look through yet *eesh*, Tomorrow I have an appointment with Dave (from the EDC) to work on my cover letter for Second Story Press and I had hoped to be much [Read more]
Last night… Thought we’d go in at a decent time tonight as I have messed up Lloyd & Emeraude’s evenings/bedtimes during this whole treatment. Lloyd has badminton and so Emeraude came with me to MGH and I hoped to get her some supper at the cafeteria between IM Toredol and the [Read more]
What a wonderful day! When we first arrived, I realized that the mittens Emeraude had werestill wet and Danile offered to come back to my (the kids) house and pick up a dry pair so Emeraude went along. I sat there for a while waiting before realizing this was my opportunity to go up on [Read more]
After 2 hours of arguing with Dr.Crawford about increasing my pain meds, the discussion turned to Tuesday’s (tomorrow) appointment and that I was hoping to suggest giving my IV Solumedrol treatments again (they failed in January but that was a full 3 months ago and my body might have lost [Read more]
I was relieved to see Bonnie was attending when I went in this evening. The IV that had been put in last night (anticubital by my request) looked awful, the butterfly sides not having been taped had gouged into my arm (read yesterdays…) and so I asked her if she could put in a new [Read more]
It was only a matter of time apparently before Dr.Crawford would be influenced by others at the hospital in this ridiculous idea that I should only be allowed pain relief for certain amounts of time and then it’s just too bad so sad, deal with it. Or at lest that is the only thing I can [Read more]
Well, Emeraude & I went sliding again today. It was AWESOME! So warm out we had a ton of fun (+ 1 crash which I survived suprisingly well lol). Lloyd is still sick, this morning it almost seemed like he was still getting worse which was really worrysome. I’m still not feeling very [Read more]
Just another trip to MGH for pain meds. Emeraude was with me and couldn’t resist the puddles along the sidewalk outside. Still going 3-4 times/day for Dilaudid injections which really limits my ability to live like a normal person but I am grateful that I have Dr.Crawford on my side during [Read more]
Well, the 5 day predinose attempt is done (it finished Sunday); Dr.Crawford wanted me to take 50mg of oral prednisone daily as he though t this would improve my symptoms (I am as I write, feeling a little concerned that perhaps he too is falling into the idea of focussing on pain as my worst [Read more]
Emeraude is resting for 1/2 hour to give me a chance to build up a little energy… It’s a really bad day, more fatigue than I have dealt with in a long time, I think there may be stress factors contributing to this situation, hopefully some fresh air fun with my girl will help with [Read more]
Sunday, March 8th, was a beautiful day and I intended to take advantage of it and did! It took most of the day to get to the fun outside part but towards the end of the afternoon (after groceries and the hospital of course – more painwere finally on our way out into the snow. Lloyd [Read more]
